Discussions By Condition: I cannot get a diagnosis.

Mystery illness lasting 4 months for myself and my daughter... Thoughts?

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • January 31, 2018
  • 01:06 AM

My 13 yr old daughter and I got sick mid sept (two weeks apart) and have been sick for 4 months. Out of work/school for 2.5 months, now slowly building up to full time with sick days. Can't get a diagnosis other than "mono like virus" we can't test for. Seen 10 doctors (4 primary care, 3 infectious disease, 1 rheumatologist, 2 naturopaths.) Interested in any ideas? (Son/husband not sick, live in NH

Symptoms: muscle aches (arms/legs muscles only, my daughter explains it like it feels like a sumo wrestler is sitting on her), fatigue, flu like feeling. NO fever, NO headache, NO rash. NO joint pain. NO sinus issues She has a cough, breathing issues, I don't. (Muscle aches and fatigue are improving and now have intermittent days, home sick about 1-2 days a week)

Tested Negative for: Mono (5 times) ( I had past infection, she didn't) CMV, strept, blood disease, Lyme full panel (multiple times), Babesia Duncati/ microti, anaplasma phagocytip, HHP6, HHP7, parovirus (daughter showed past infection, I didn't), c pneumonia (both showed past infection), ehrlivhia chaffeenis

Treatments we have done: I did a 5 day Zpack (when they thought it was bronchitis), we both did doxycycline (2 week and 3 week course, when they said it might be Lyme), herbal antivirals

"Treatments" we are doing: probiotics, vitamins,massage, meditation, icing/heating, changed diet (no wheat, no dairy, no eggs). Outside walks


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