Discussions By Condition: Other Conditions

Desperate mom: my 9 year old son can pass out without warning for a very long time & no diagnosis

Posted In: Other Conditions 0 Replies
  • Posted By: Anonymous
  • June 1, 2017
  • 00:14 PM

My 9 year old son has been passing out, sometimes 3 times a day for a very long time. The condition appears to be getting worse as he now experiences temporary paralysis afterwards (can last for up to 1 hr) and memory loss. We have been seeing a paediatric neurologist for the past 18 months and there doesn't seem to be any solution. We did about 6 EEG(and a whole lot of other tests) until the 7th one indicated he might be suffering from epilepsy. The EEG was repeated a month later and the dr confirmed it was epilepsy and he started medication. He never has any jerking movements when he is passed out. If I don't try to "wake" him up he can be out for more that 2 hrs and when he does come to, he is normally very tired(this does not quite fit in with epilepsy). The passing out is normally followed by some paralysis or numbness of the hands/ legs or an entire side of his body. He will also have no memory of anything that happened 10-20 min before he passed out and in extreme cases he might not even have any memory of events from the past 24-48 hrs. The memory does return a day or so later. The last EEG done in march came back normal.

There are also instances where he complains of chest pains before passing out. They have been monitoring his heart for 3 months now and the paediatric cardiologist says there is absolutely nothing wrong with his heart.

The epilepsy medication does not seem like it's having any positive effects as he actually seem worse that before he started medication.

We met with the cardiologist yesterday for another round of tests and he basically indicated he can't explain my son's condition medically.

I am just wondering if there is anyone that can assist me in helping my son

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